Employment

Talking with your employer about a dementia diagnosis is a personal decision. In many cases, disclosure is not immediately required. However, if you need a workplace accommodation to perform your essential job duties, it is generally advisable to begin that conversation before performance issues arise.

The ADA encourages an interactive process — a collaborative discussion between you and your employer to identify reasonable accommodations that can help you succeed.

Preparation is important. Think through your goals, write down your questions, review your employer's accommodation procedures, and consider bringing documentation if appropriate. If your workplace has a human resources department, they can often help facilitate the process.

Keep notes of important conversations and document any agreed-upon accommodations. The most successful discussions are respectful, specific, and focused on finding practical solutions that work for both you and your employer.

Remember, asking for support is not a sign of failure. It is often the first step toward continuing to work successfully and confidently.

John: Chris, receiving a dementia diagnosis can be overwhelming. Before talking with an employer or even meeting with an attorney, is there anything you recommend people do to prepare?

Christian: Absolutely. Have a simple plan or agenda before the meeting. Write down your questions, bring notes, and don't be afraid to refer to them. Remaining calm, polite, and focused on finding solutions can reduce stress and help you get the information you need.

John: Should someone take the time to read their employee handbook or workplace policies before speaking with their employer?

Christian: Yes. Your employee handbook may explain accommodation procedures, medical leave, disability benefits, confidentiality, and Human Resources contacts. Reading it beforehand can help you ask informed questions.

John: If someone wants to learn more about their rights under the ADA, where should they start?

Christian: A good place to begin is the Equal Employment Opportunity Commission, or EEOC, along with the Job Accommodation Network. If your situation is complicated, or you believe your rights have been violated, consider consulting an attorney experienced in employment law.

John: What's the most important message you hope people remember?

Christian: A dementia diagnosis does not automatically mean you have to stop working. Learning about your rights early and preparing for conversations can make a meaningful difference.

John: Any final advice regarding the ADA?

Christian: Don't rely on memory alone. Bring a written list of questions, take notes, be respectful, and approach conversations collaboratively. Having a simple plan can help you feel more confident.